NHS Digital is collecting and disseminating GP data for planning and research (GPDfPR). The first data extraction for GPDfPR is due to occur on 1st September 2021, therefore patients who do NOT want their data to be extracted have to register a “Type 1 Opt Out” with the practice prior to this date.
This is different to the “National data opt out” (previously known as a “Type 2 opt out”)
What data is shared:
Data may be shared from the GP medical records about:
- any living patient registered at a GP practice in England when the collection started - this includes children and adults
- any patient who died after 1 July 2021, and was previously registered at a GP practice in England when the data collection started
The NHS needs data about the patients it treats in order to plan and deliver its services and to ensure that care and treatment provided is safe and effective. The General Practice Data for Planning and Research data collection will help the NHS to improve health and care services for everyone by collecting patient data that can be used to do this. For example patient data can help the NHS to:
- monitor the long-term safety and effectiveness of care
- plan how to deliver better health and care services
- prevent the spread of infectious diseases
- identify new treatments and medicines through health research
GP practices already share patient data for these purposes, but this new data collection will be more efficient and effective.
This means that GPs can get on with looking after their patients, and NHS Digital can provide controlled access to patient data to the NHS and other organisations who need to use it, to improve health and care for everyone.
Contributing to research projects will benefit us all as better and safer treatments are introduced more quickly and effectively without compromising your privacy and confidentiality.
NHS Digital will not collect patients’ names or addresses. Any other data that could directly identify patients (such as NHS Number, date of birth, full postcode) is replaced with unique codes which are produced by de-identification software before the data is shared with NHS Digital.
This process is called pseudonymisation and means that patients will not be identified directly in the data. NHS Digital will be able to use the software to convert the unique codes back to data that could directly identify patients in certain circumstances, and where there is a valid legal reason.
These opt-outs are different and they are explained in more detail below. Your individual care will not be affected if you opt-out using either option (or both).
A Type 1 opt out has to be registered by your Practice; please complete this form and return via email or post Type 1 Opt-out Form
A National Opt out can be done without contacting your practice, at https://www.nhs.uk/your-nhs-data-matters/
Your Data Matters to the NHS (National Data Opt-Out)
Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments. The NHS is committed to keeping patient information safe and always being clear about how it is used.
How your data is used
Information about your individual care such as treatment and diagnoses is collected about you whenever you use health and care services. It is also used to help us and other organisations for research and planning such as research into new treatments, deciding where to put GP clinics and planning for the number of doctors and nurses in your local hospital. It is only used in this way when there is a clear legal basis to use the information to help improve health and care for you, your family and future generations.
Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.
You have a choice
You do not need to do anything if you are happy about how your information is used. If you do not want your confidential patient information to be used for research and planning, you can choose to opt out securely online or through a telephone service, 0300 303 5678. You can change your mind about your choice at any time.
Will choosing this opt-out affect your care and treatment?
No, choosing to opt out will not affect how information is used to support your care and treatment. You will still be invited for screening services, such as screenings for bowel cancer.
What do you need to do?
If you are happy for your confidential patient information to be used for research and planning, you do not need to do anything.
To find out more about the benefits of data sharing, how data is protected, or to make/change your opt-out choice visit www.nhs.uk/your-nhs-data-matters
One Health and Care – GOING LIVE SUMMER 2021
‘One Health and Care’ is a new integrated care record for individuals registered at Shropshire, Telford and Wrekin GP practices that brings data together from the different organisations involved in health and social care.
Completely confidential and secure, it’s designed to help doctors, nurses and other registered health and social care professionals directly involved in your care to make better, safer decisions.
The information that they will be able to see includes:
Your name, date of birth, sex, address, telephone number, NHS number
The name of your GP Practice and GP
Medications, allergies, ongoing and historic conditions, immunisations and diagnoses
Test results, hospital referrals, admissions, discharges and clinics attended
Social and mental health information and care plans
Sensitive information such as attendance at sexual health clinics, fertility treatment records, and records relating to gender reassignment will not be included.
If you’re happy for your records to be available on One Health and Care to health and social care professionals, you don’t need to do anything. Alternatively, if you wish to raise an objection, you need to contact your GP Practice.
Further information is available on our patient leaflet which can be viewed in our services tab or by contacting: